Jodie O’ Neill from Limerick was just 8 months old when she was diagnosed with Optic Nerve Hypoplasia and Nystagmus.
Her Mother Rebecca was advised to contact the NCBI and describes the services she receives as ‘amazing’.
Rebecca stresses that any parent who has a child with a visual impairment should make contact with the NCBI. She says that the emotional and psychological support in particular is as vital as the practical and everyday support. “The NCBI has seen Jodie up through the years, it has been brilliant, and Colette and Caroline whom we are in regular contact with are just gems. Nothing is ever too much trouble and they are great guides, they show us the way and we have great confidence in them”
Jodie has benefited hugely from assistive technology. Rebecca goes on to say “The NCBI has been a wealth of knowledge around all things technological. Jodie received a Scholar Magnifier when she was in Senior Infants and it made a dramatic change to her life. Now she has Jaws , Zoom text , Siri and Voiceover as well as a super app , Join Me , which means she can link up with her Teacher in school and see the notes on her phone as they are being written, instead of having to look at the board”.
Rebecca says she is so grateful for the technological advances that have enabled Jodie to participate in school and social situations. She says that while she is mindful of the concerns surrounding technology she is acutely conscious that “for some children it is their only chance of getting on and connecting. The technology that is out there is life changing. The NCBI is a great ‘go to’ place to learn all there is to know”.